Veronica Aherne Reasoner July 19, 2010-November 20, 2011
A healthy baby girl blessed our lives and after a quick discussion on what to name her we began the journey of becoming a family. Veronica was an easy and pleasing baby. She thrived and everyone that met her surely felt their heart grow. Her blue eyes and mischievous smile would inspire adventures of all sorts. We had 15 wonder-filled healthy months.
All this would forever change when one Saturday afternoon she did not seem herself. She had a tremble that felt like a shiver but progressed to unstoppable seizures. We had wonderful doctors and nurses at Children's Hospital but nothing could be done to break the cycle of seizures. Often children have seizures and no cause is found. We kept getting negative results - not meningitis, not this or that - until eventually a metabolic specialist ordered a DNA test. A few days later we had a diagnosis. Veronica had a rare metabolic dysfunction called Alpers Syndrome. We were told of the progression of the disease and came to grips with the fact that our daughter would not have the life we dreamed for her.
She passed away in our arms without suffering. In honor of Veronica and our infinite love for her, we have made it our mission to make genetic testing and research into alternative tests for Alpers readily available. Our hope is that through public awareness, no other child or family will have to suffer the pain and sadness that we, and others before us, have had to endure.
You may follow our 16 day journey at Children's on CaringBridge.org. We have also started a foundation to raise awareness of Alpers and as a loving tribute to our sweet Veronica's Voyage, AlpersAwareness.org. Every penny raised through the Foundation goes to helping Alpers kids and their families.
If you wish to join Team Veronica's Voyagers consider purchasing one of our jerseys. The cost is $125 (available from me or Vecchio's Bicicletteria in Boulder), with every penny raised going to our Alpers Awareness Foundation. Please contact me at firstname.lastname@example.org for more details.