I am supporting the Courage Classic for patients like Maliah.
Maliah was born with Hypoplasic Left Heart Syndrome. She made it through her first procedure (Norwood) without any problems, but when it was time to do her second procedure (Glenn) - that’s when things started going downhill. The hospital was basically a rotating door for Maliah and her parents. They were in the hospital for a total of 5 months when she was first born and then after she was released, monthly stays every now and then.
She was soon placed on the heart transplant list when her cardiologists decided that it was too risky to attempt another heart surgery because of the unknown reason her operations had failed. In June 2018, Maliah was in severe heart failure. She was stable but not very stable at the same time. Her heart could not have came at a better time on September 2nd.
Today, Maliah is walking, eating by mouth, babbling, wanting to play non-stop. She loves going up to people and hugging them. She waves at people passing by. Her energy level is incredible and her personality has blossomed so much. Prior to transplant - the only thing she could do was sit up and sleep. She managed to fit all three years of missed milestones into the past year! "She's freaking amazing", says her mother, Margaret.
Maliah will not be the last child to face a life-threatening illness, and his family will not be the last to navigate a frightening diagnosis.
The Courage Classic is not only a personal challenge, but also an opportunity to support positive outcomes and healthier futures for children.