I am supporting the Courage Classic for my daughter Matilda.
Our daughter Matilda was found to still have a PDA at 2 months of age. As we monitored her heart over the next few months, things were not getting better and her weight gain was flattening. We made the decision, with her doctors, to move forward with a Cath Lab procedure to close the PDA when she was 7 months old.
While in the hospital overnight for monitoring of the installed device, she went into an abnormal heart rhythm, called SVT and she was diagnosed with Wolf Parkinson White Syndrome. We had no idea that for the first 7 months of our little girls life that she had probably been living with this condition.
Thanks to the Children's Heart Institute staff we now have her on a plan of care and she has improved greatly over the past few months. We are so appreciative of the entire team that has taken care of our sweet little girl: Dr. Dale Burkett, Dr. Neil Wilson, Dr. Mark Twite, Dr. Liz Young, and countless wonderful nurses and fellows.
The Courage Classic is not only a personal challenge for me, but also an opportunity to support positive outcomes and healthier futures for all children.