Here is Jocelyn's story from her family:
"Jocelyn Hope was born on August 30, 2016 with DORV, TAPVR, AVSD, pulmonary atresia, heterotaxy, malrotation of the intestines and over time developed pulmonary vein stenosis. Jocelyn fought a good fight. She fought a brave fight. In 19 short months, she underwent 5 cardiac surgeries- 3 in Denver and 2 in Boston. Her mere presence made you fall in love with her. Her smile and big beautiful eyes penetrated through people. Jocelyn taught us that it is not the size of the physical body that determines the amount of love and strength. It is the size of their hearts. Jocelyn had a huge, loving, shining and radiant heart. Jocelyn lost the battle against CHD on April 9, 2018. She will forever be in our hearts. Thank you to Children's Hospital Colorado CPCU/CICU for everything you did for our sweet Jocey!"
Jocelyn truly was an incredible girl with an unbreakable, passionate spirit. I had the opportunity to play a small role in many of her big hospital milestones- sending her to Boston for her repair, admitting her again once she returned, caring for her a number of times before her discharge home to live a full life being loved on fiercely by her parents and three older sisters. Between sweet play time to ICU visits to snuggling before naps, Jocelyn completely stole my heart. I am so honored to be able to ride in her memory again this year. She and her family, like so many other families battling Congenital Heart Disease (CHD), have endured so many trials but they prove to be incredibly strong. Jocey's physical heart certainly wasn't perfect but it was strong, capable of so much love and brought abundant joy to everyone around her.
All the money raised will go to the Heart Institute at Children's Hosptial Colorado to help the families I get the pleasure of working with who have children battling CHD. I ask that you consider donating to my fundraising page as I begin to train for this event! Donations big and small can help the 1 in every 100 children born with heart defects!
Thank you so much for reading Jocelyn's story and raising awareness for CHD!