I am riding the Courage Classic to help kids and families with childhood cancer. My hope is to give parents options when confronted with nothing but bad, devestating, heart-wrenching news that their child is terminally ill with cancer.
Why am I doing this?
On December 16th, 2016, our sweet Fynn (at 7 years old) was diagnosed with DIPG—Diffuse Intrinsic Pontine Glioma—a stage four incurable brain tumor with the lowest survival rate of all pediatric cancers. DIPG affects 200-300 kids per year, and has a 5-year survival rate of <1%. Moreover, most children diagnosed with DIPG live a staggering 9 months, with radiation treatment. With great sorrow, we said goodbye to Fynn on April 9th, 2017.
Radiation is only palliative - it arrests the tumors growth, but it comes back kicking hard! Chemotherapy doesn't work because the chemo molecules are too large to pass through a membrane the blood must pass through to get to the brain. Recent trials include infusions where a child goes into an intensive brain surgery and for 12 hours the doctors feed the medicine to the infected site through a tube; the child must go through this extremely invasive procedure at least 3 times and it still has not been successful. This disease HAS NO CURE!
When Fynn was diagnosed with DIPG, Colleen and I waited a week for the Oncologist to meet with us and when we finally met, the first words out of his mouth were "It's not good news." Knowing how heart-breaking this news is, there's nothing we want more than one day, parents in the same situation can hear "I'ts not good news, BUT, we have a couple things we can try."
Research will get us there. And that is why we are raising money with this team because all the money goes toward research for cancer and blood disorders at CHC.
Now I need your help! Will you make a donation? Every dollar makes a difference for the thousands of infants, children, teens, and young adults fighting childhood cancers.
The Fynn Fighter Family