Why I ride
This is the 23nrd year I have ridden in the Courage Classic. I ride to raise money for children with a devastating disease called Epidermolysis Bullosa (EB). EB is a genetic disease (hence the Gene Team) which causes an absence of the collagen (protein) and fibrils that hold the layers of skin together. Children with EB suffer blisters and sores with any trauma. It is like living life with 2nd degree burns. The children live with constant pain, loss of mobility and hand function, anemia, and several other consequences. They are terrific kids who have been dealt a bad hand. It is an expensive disease, requiring specialized bandages and dressings, which do not stick to their skin. Most also need power wheelchairs or scooters, and often it is impossible for both parents to work because of the frequent hospitalizations and care needed. The EB riders on the Gene Team ride to raise money for the EB Family Assistance Fund and the Beall Family EB Endowment Fund which provides money for families needs not covered by insurance, Camp Spirit - the winter adventure camp for children with EB, and research, the ultimate hope for the children. Thank you for considering a donation to help our kids and families. They inspire me every mile I plod up those mountain passes.